Hi @Shaz51
Wow, that's intense! You're dealing with an awful lot there and yet you have some capacity, inclination to pop into these text boxes and whatnot and have compassion for others. That's incredible. The only person I communicate with - albeit over email - on a daily or greater basis, has had both his kidneys removed due to polycystic kidneys. He's doing home, overnight dialysis thrice a week. I've tried very hard to be supportive of this. So, I know a lot of details about his treatments. Don't quite understand all of it, but I can relate to some of the terminology. That said, (I wonder if this will be flagged inappropriately) the term 'fistula' has consistently been a difficult one to take seriously, LOL.
I strongly doubt there's a private chat option in these forums. If there is, I would be open to discussing your kidney situation a bit more, if that would be of interest and potentially helpful.
Having multiple diseases at once is cruel. Let alone major ones like osteoporosis and kidneys. I feel for you and will have to post photos of an experience I am still just about able to get, daily, that helps me through. It might give you a lift. I'll have to pop offline for a while, now, though.
In case I don't get to mention it, I do hope you can find some improvement in at least one of your conditions, ASAP.
FWIW, I can give some feedback about the medications I've tried. Not in any sort of responsibility context, of course (don't worry, mods!). Just feedback of my own experiences that may not be relevant to you. If that is possibly helpful. Or not.
