I’ve reread my messages : they seem pretty garbled and unreadable. 

Sorry about that @Cord. I used to think that the only time a hospital with social workers and case workers and Psychiatrists would give US carers support was when there was a life threatening situation. 

The most important thing for you and me, for all of us here is to get support for us. 

The journey is for sure not over. But how WE decide how to live our lives is what matters. 

Now in Australia. It is  100 percent   illegal for the hospital workers not to listen to the loved ones / family members so how can you resolve  that ? Can you get an advocate ? Is that here a person that you can access from your general doctor ? ( would they know of someone ?) or maybe the community Pastor ? In my years of being with my husband ( only 😎 we have joined the community church to get extra support. What about family and friends ? 

Do do you have a friend that you can visit and say : “these are my problems ...... I have appointment with ..........this is what I want for an outcome .......... can you come with me to keep my needs to what I want to achieve ??