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Hi @eth I sent an email to my first support coordinator asking when she was going to do anything and she replied with a list of things she had done, which wasnt much. So I went on facebook and put in a complaint to her company via PM. They got the CEO and she emailed and sorted it out for me and made sure I was okay (had food etc). She looked at both sides of the situation and said she'd refund the hours that the first SC had spent (not all companies will)
Then I emailed the local NDIS office as they had contacted me in the beginning to pick a support coordinator and told them what was happening. They said to let them know when I had chosen a new one. Apparently the first company had to do something with the NDIS to change the end date of our agreement, I dont know exactly how but they had to do that before the new one can get paid.
The second one isnt completely useless, she's just deciding things for me and when I email her about it she gets all professional and puts me off guard. I did arrange for an appointment with her to come over here, and when she got here I gave her a list of things to do. She got more done in that hour than she had in the almost 3 weeks prior!
People are talking quickly and my brain doesnt work fast enough to keep up. If I try and email the SC for help I keep getting the "I'm out of the office today" message. Or she will arrange for me to meet a service (by myself) and then tell them I will take it from there without talking to me about it, but I dont have enough knowledge to do so. If I try and tell her that I dont get a response. She actually answered some questions I had for a meeting yesterday, 20 mins after the meeting had started!! But I needed them before the meeting so it was too late.
One of the things I said in my submission to the politicians is that we need a private place where participants can review the support companies and workers without fear of reprisal so that we can see who to trust, or who might be a good fit. We also need a single person who is there just to make sure we are okay, their pay shouldnt depend on time they spend on us (cause my Sc spent time googling stuff that I didnt need her to!).
We need to speak up in these parliament enquiries while we can. It doesnt have to be a "professional" submission, just write and say whats happening to you and how it is affecting you, and what they could do to improve it. I wrote mine in my own words, nothing fancy, but at least I had a say. If we dont tell them, they dont know.
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